Sensory Issues No More?

I have been on hiatus.  With a lot of things going on, I had to pause.

Been busy, with lots of activities for the kids.  We keep our momentum going in making sure they get good portion of play, every single day.  Cycling or running is a must after coming back from school and therapy. When I say  A MUST, I really mean it.

I’m in a few support groups (via Whatsapp) and these groups are into comparing stories, experience, up and downs, potentials, dos and don’ts in raising special need kid.  The only group that I find very sincere is the one that is based in KL. Everybody in the group are very sincere in commenting when someone ask.  We don’t just praise or find excuses for the kids. That is what I love most about the group.  Founder of the WA group is Clarence Kang mother (google Clarence Kang; autistic pianist).

I have ‘seen’ via FB and WA groups that parents are so into getting their special need kids to SPEAK (even not communicate) and WRITE.  How can you get them to communicate and understand you when their sensory issues are haywire? I have seen a 5 year old kid who can’t sit even for a minute.  You can buy all the EO, magnesium oil, OT brush, weighted blanket but if you don’t make your kid tone down their sensory seeking thingy, then there must something wrong in your investments.

Those EOs, magnesium oil, epsom salt, OT brush, blanket are not the same in sensory input activity. Get your child dirty & sweaty, get them to run, cycle, let them do some gardening.  Sign up for a sport lesson. These things are crucial.

I won’t respect you if you use a tablet or a phone to calm your child at a table. YES and I mean it. Be it typical kid or special need kid. We give some screen time to our kids, with supervision and limited time, but definitely not as a ‘Risperidone’.
#sensoryinput  #essentialoil  #YLPerlis  #younglivingperlisIMG_0007.JPG

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Tone down the ADHD

I always get comments like – “Is he with ADHD? doesn’t look like one. Is he really hyperactive? He can follow your orders and sit still” To be able to answer these sort of questions, one must be tough mom! Seriously.

How can he sit still during meal time? What does he do while travelling? How do you engage with him? How do you make him listen to the coach? Can he play along with the other kids?

I must tell you, it takes endless Doa/prayers plus patience and training to be able to make an ADHD boy toned down. Last night his therapist messaged me while we were having supper at a local coffee store. “Seronok tengok Azfar macam anak tipikal (membaca sementara menunggu meal)”

I am a fierce mom?- YES, I am; or maybe not BUT I am being strict with Azfar. Discipline is everything when dealing with ADHD/ASD boy I suppose. Alhamdulillah, Praise to the Almighty Allah, we have no problem bringing him to hair salon for his haircut, no problem doing grocery shopping, no problem at all while visiting dentist! My routine for him pays.

Set the example– What if he refused to brush his teeth? I get down on my knees and hold his jaws and I do the brushing back then.

Social stories– Let them know what to expect when going to a mall, what to do, what NOT to do, what do I expect from him? What to expect at the hair salon, the dentist.

Remind, remind and remindI personally think you can’t stop reminding what do you want from him/expect.  After a while you will notice that he can knows what is expected from him.  I’ll give you an example of our normal situation going to a mall (conversation translated to English):

I: We are going to Giant (a mall)..We are going to get some groceries and who ever behaves well will get something special from me!!
Kids: YAY!! can we get toys/bubbles/pens/art papers???
Azfar (prompted in a very firm tone): Remember Hakeem, no running, no fooling around. Do you understand?!!!

So, you see..when you keep on saying the things you expect from them, they will be!  I must admit, he sometimes behave better comparing to ‘typical’ kids.

Endless encouragement I am still learning the difference between encouragement and pushing to the limits.  Whatever the term is, I find that encouragement can bring miracles to you.  Simple word can bring joy to your child. ” Great job! high 5 please” , “Wow!!” “Fuyyo, great work”, ” Beautifully done”, etc.

Although we all know that there are rooms for improvement but, they deserve encouragements prior commenting 🙂

Rewards and punishments-Knowing how he loves Westin Langkawi Spa & Resort, we make it official. We announced that before the year ends, the whole family will again visit Westin Langkawi. But, that doesn’t come easy.My husband and I keep repeating this thing every single time Azfar requested for Langkawi.  To us, everything must be a win-win situation.

” Azfar nak pergi Langkawi dak? Solat tak boleh tinggal…Mesti rajin pergi sekolah, rajin pergi terapi, tennis mesti ikut cakap coach, tak boleh lari-lari, mesti berlatih, mesti bersunat”
Translated: Azfar, do you want to go to Langkawi? If you want, you must make sure to complete prayers 5 times daily, you will have to go to school, therapies and tennis lessons. You cannot play around and you must also do the circumcision.

My advice, do it continuously and consistency. Although some say, miracles happen overnight, but in my case it doesn’t happen that way.

A teary Monday night

I did not know what came over me last night.

Will he ever get married? Will he graduated from school of art? Will he excel in life? Will he get a job?

AM I IN DENIAL, still?  Should I be asking these questions if I accept him the way he is?

“Aiza… Can I ask you something? Do you accept him as he is? With ADHD? Accept him for who he really is?”

and my answer was…. “OF COURSE!!!” (after a long pause) and I cried. That was my answer.

Who can I talk to? or more of who can just sit with me for 1/2 hour in silence? No one, full stop. Not for now I think.  Who can really understand and feel me? No one.. just no one.  Am I struggling alone? Physically, no.  Do I share my son’s KPI with my partner? I’m not sure. I can’t really tell.

It is sad looking at his low muscle tone. How he sometimes struggle with some sensory issues; either overload or under load.  Picky eater he is. 😦  I assigned him for tennis class and it seems to go okay for a while.  Let’s hope he can survive in the neurotypical kids surrounding.

Alhamdulillah, his speech embarks to a whole new level now.  He is more expressive. We are now on Reconnect Kit protocol by Young Living .  It works well with him.

Thank you Allah swt for sending us an online friend- Marissa Ali. She is an angel. Helps me a lot (she might not realise this but TQ so much Marissa Ali).  Not only she helps me with my oiling part, but with knowledge sharing sessions.  I can’t afford to repay her for all the oils and stuffs you gave my son; and the most important thing- the encouraging words you gave me.

O, heart! Please be strong and be kind.

Sincerely,

Aiza Jasmi,An ADHD Mom

I have to STOP calling my son ‘hyper’

Some people refuse to label, I am not pre-label but label helps us to view the full potential, the hiccups we should be expecting and frankly, labels help us to guide azfar better.

Telling, saying, calling my son is with ADHD is not labeling him with disadvantages or disabilities.  I know deep in my heart somehow the ‘dis’ is there :(.  From now on, I MUST stop calling him that. I must be calling him by his advantages.

My azfar is

a happy boy…

good singer

creative

precise

energetic

into drawings

loves architectures…

These are the values I need to focus on. Rather than focusing on his weakness, I must be valuing his positive qualities. 🙂

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Aidilfitri-a big challenge for me!

Azfar Hazim is currently facing some sensory overload!!! ARGHHHH.. I am the one who really need to calm down. not him.  Can’t blame him for the overloadness :((

One reason why I do not visit friends and families on Hari Raya (not unless they understand azfar’s situation) is because he can be very sensitive to his surroundings- especially smells, clusters, toys, curtain colours and even to the extend not aligned photo frames.  Last year, we went to a house, and azfar pointed out a painting at my friend’s house…. ‘Ummi..tu..salah tu…’ . Everybody looked and realised that painting was tilted to the left. Oh dear darling! *face palm*  Everybody praised him , but I felt sorry for the host.. 🙂 hehehehe.

This photo is just an example. Azfar parks his bike at the same spot, hang his helmet on the right side of the handle and he does that every single time we’re off to the playground. OCD meh? erkkk..2015124083246